This is one very special family. We knew it from the very first email that was sent to us. Jolyn is the proud mamma of two incredible boys, Carter and Joel. When Jolyn first started talking with us about setting up a photo shoot, she informed us that this would be a special photo shoot because Joel, at the tender age he is, has a rare condition that makes his story special.

Joel has Neurofibromatosis Type 1.  1 in 3000 children are affected by this genetic disorder.  People affected with NF1 get tumors mostly in their brain, spine, and externally.  It is commonly known as “the elephant man” disorder.  In August of 2009, Joel had a 2.5 CM tumor removed from his cervical spine.  After removing the tumor, the bones in his neck began to move into an unnatural curve.  His neck is very unstable without a very restrictive neck brace.  At 16 months, he does not walk or crawl.  In time, Joel may have his cervical spine fused.  He will not be able to turn or move his neck.  He still has a tumor in his chest that needs to be removed in 2010. He needs a miracle and lots of prayer.

Joel has a very sweet spirit and a happy demeanor. Carter is such a great big brother to Joel, and quite the comedian! He loved showing us how he can do ‘arm farts’! Ha! He had us laughing the entire time. You can tell that Carter loves Joel very much and he asks why his neck is not healthy. But Joel was all smiles during the entire photo shoot! It was such a blessing to hang out with this family for an afternoon. Jolyn, Carter and especially Joel need a lot of prayer. Please be praying that Joel would be completely healed, that Jolyn would have the strength to continue being an amazing mother to these two boys, and that Carter would continue to have the ability to understand Joel’s condition. Pray that Joel would never loose his sweet spirit. Truly, if you were to hang out with this family for five minutes you would understand exactly what I mean. This little family is amazing. So full of love and amazing strength.

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